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Carer burden in dementia—assessing the impact of behavioural and psychological symptoms via self‐report questionnaire
Author(s) -
Neil Wendy,
Bowie Peter
Publication year - 2008
Publication title -
international journal of geriatric psychiatry
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.28
H-Index - 129
eISSN - 1099-1166
pISSN - 0885-6230
DOI - 10.1002/gps.1839
Subject(s) - dementia , distress , psychology , psychiatry , clinical psychology , psychological distress , quality of life (healthcare) , medicine , disease , mental health , pathology , psychotherapist
Abstract Background The relationship between the behavioural and psychological symptoms of dementia (BPSD) and negative outcomes in carers has been consistently demonstrated, however the quality of the assessment of the former in routine clinical settings is variable and validated interview‐based scales are frequently underutilised. Aims To develop a carer self‐report questionnaire, the Behavioural and Psychological Symptoms Questionnaire (BPSQ), for the assessment of the neuropsychiatric symptoms of dementia and associated carer distress. Method The BPSQ was administered to the carers of 30 community‐dwelling older adults with diagnoses of Alzheimer's or vascular dementia and the results compared with interview assessment using the Neuropsychiatric Inventory (NPI). Results BPSD were present in 96.2% of patients. There was strong correlation ( r s = 0.61, p < 0.001) between the BPSQ and interview with respect to measures of symptom frequency and severity. However, there was significant divergence between the two assessment schedules with respect to carer distress which was found to be significantly under‐reported in the initial interview ( U = 64.00, z = −5.22, p < 0.0001). Conclusions The BPSQ is an effective tool to complement clinical interview in the assessment and monitoring of BPSD, and provides useful additional information with respect to carer distress, which currently may be under recognised. A follow‐up study is required to complete the work of validating the BPSQ. Copyright © 2007 John Wiley & Sons, Ltd.