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Exploring the use of individualised patient‐reported outcome measures in eating disorders: Validation of the Psychological Outcome Profiles
Author(s) -
Austin Amelia,
Potterton Rachel,
Flynn Michaela,
Richards Katie,
Allen Karina,
Grant Nina,
Glen Danielle,
Mountford Victoria A.,
FranklinSmith Mary,
Schelhase Monique,
Jones William R.,
Serpell Lucy,
Mahoney Kate,
Brady Gaby,
Nunes Nicole,
Kali Kuda,
Connan Frances,
Schmidt Ulrike
Publication year - 2021
Publication title -
european eating disorders review
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.511
H-Index - 67
eISSN - 1099-0968
pISSN - 1072-4133
DOI - 10.1002/erv.2819
Subject(s) - patient reported outcome , prom , eating disorders , anxiety , context (archaeology) , clinical psychology , psychology , psychometrics , psychiatry , depression (economics) , medicine , quality of life (healthcare) , psychotherapist , obstetrics , economics , biology , paleontology , macroeconomics
Rationale Psychotherapies for eating disorders (EDs) are routinely assessed using standardised patient‐reported outcome measures (PROMs). PROMs have been criticised for their lack of patient centeredness and clinical utility. The Psychological Outcome Profiles (PSYCHLOPS) is an individualised PROM that allows patients to specify their own outcomes. Aims (1) To validate the use of the PSYCHLOPS in ED treatment, and (2) to identify patient concerns beyond those measured by common ED PROMs. Methods Two hundred and seventy‐eight emerging adult patients, presenting with a first‐episode ED (aged 16–25, illness duration <3 years) completed the PSYCHLOPS and two standardised ED PROMs (the EatingDisorder Examination Questionnaire [EDE‐Q] and the Clinical Impairment Assessment Questionnaire [CIA]) at four time points across 12 months. Psychometrics of the PSYCHLOPS were assessed quantitatively against the EDE‐Q and CIA. Content analysis assessed unique patient concerns identified by PSYCHLOPS. Results The PSYCHLOPS had adequate to good psychometric properties. A total of 53.3% of participants reported a concern not addressed by the EDE‐Q or the CIA, the most common being depression/anxiety, academic problems, treatment concerns and disturbed sleep. Discussion PROMs can be complemented by the PSYCHLOPS to identify problems specific to an individual's context. As ED patients are typically ambivalent about change, understanding their concerns is vital in building motivation for change.