Premium
Carers' Assessment, Skills and Information Sharing (CASIS) Trial: A Qualitative Study of the Experiential Perspective of Caregivers and Patients
Author(s) -
Macdonald Pam,
Rhind Charlotte,
Hibbs Rebecca,
Goddard Elizabeth,
Raenker Simone,
Todd Gill,
Schmidt Ulrike,
Treasure Janet
Publication year - 2014
Publication title -
european eating disorders review
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.511
H-Index - 67
eISSN - 1099-0968
pISSN - 1072-4133
DOI - 10.1002/erv.2320
Subject(s) - psychological intervention , thematic analysis , anorexia nervosa , intervention (counseling) , eating disorders , perspective (graphical) , medicine , psychology , experiential learning , clinical psychology , psychotherapist , psychiatry , qualitative research , social science , mathematics education , artificial intelligence , sociology , computer science
Background Families express a need for guidance in helping their loved ones with anorexia nervosa (AN). Guided self‐help interventions can offer support to caregivers. Methods One hundred seventy‐eight adult AN patients and their caregivers were recruited from 15 UK treatment centres. Families were randomized to carers' assessment, skills and information sharing (C) intervention + treatment as usual (TAU) or TAU alone. Feedback forms were sent at 6 months post‐discharge and, if not returned, at 12 months. One hundred two (57%) patient forms ( n = 50TAU; n = 52C) and 115 (65%) caregiver forms ( n = 60TAU; n = 55C) were returned. Two researchers coded data blind, using thematic analysis. Results (i) Caregivers and patients express a need for post‐discharge support. (ii) Patients identify helpful and unhelpful support strategies, useful for developing future interventions. (iii) Patients could identify positive caregiver behaviour changes targeted in intervention. (iv) Guided self‐help may benefit caregiver and sufferer, post‐discharge. Conclusion Caregiver interventions can be a useful tool that will improve the cost effectiveness of inpatient treatment by enhancing the well‐being of caregivers and patients. Copyright © 2014 John Wiley & Sons, Ltd and Eating Disorders Association.