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Patient portal preferences: Perspectives on imaging information
Author(s) -
McNamara Mary,
Arnold Corey,
Sarma Karthik,
Aberle Denise,
Garon Edward,
Bui Alex A. T.
Publication year - 2015
Publication title -
journal of the association for information science and technology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.903
H-Index - 145
eISSN - 2330-1643
pISSN - 2330-1635
DOI - 10.1002/asi.23269
Subject(s) - computer science , information retrieval , data science , medical physics , medicine
Patient portals have the potential to provide content that is specifically tailored to a patient's information needs based on diagnoses and other factors. In this work, we conducted a survey of 41 lung cancer patients at an outpatient lung cancer clinic at the medical center of the U niversity of C alifornia, L os A ngeles, to gain insight into these perceived information needs and opinions on the design of a portal to fulfill them. We found that patients requested access to information related to diagnosis and imaging, with more than half of the patients reporting that they did not anticipate an increase in anxiety due to access to medical record information via a portal. We also found that patient educational background did not lead to a significant difference in desires for explanations of reports and definitions of terms.