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Fighting social isolation of vulnerable people with dementia through remote group meetings: An experience report
Author(s) -
Alves Emily Viega,
de Abreu Elisabeth Araujo,
Beber Bárbara Costa,
Brandao Lenisa
Publication year - 2021
Publication title -
alzheimer's and dementia
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 6.713
H-Index - 118
eISSN - 1552-5279
pISSN - 1552-5260
DOI - 10.1002/alz.053741
Subject(s) - social isolation , psychology , social distance , dementia , dance , dance therapy , storytelling , gerontology , medicine , covid-19 , psychotherapist , disease , art , literature , pathology , infectious disease (medical specialty) , linguistics , philosophy , narrative
Abstract Project Description With the COVID‐19 pandemic (WHO, 2020), social distancing became a crucial means to prevent further spread of the disease (Wendy et al, 2020). This raises concerns for dementia care (Wang et al, 2020), as social distancing leads to reduced cognitive stimulation, exercise, social networking and leisure activities (Brown et al, 2020). Active participation in art has shown positive impacts on the psychosocial wellbeing of stroke survivors (Morris et al, 2019). Additionally, engaging with humor potentially improves the memory, communication and self‐esteem of people with dementia (PWD) (Stevens, 2012). This study aims at reporting an innovative, interdisciplinary remote intervention targeted at groups of PWD and stroke survivors during the COVID‐19 pandemic. These were part of the university community outreach program Playful Living , which aims at promoting digital inclusion, quality of life and equity through artistic group activities. The project began in 2020 and consists of weekly group meetings through online platforms, with different creative practices happening each week. These include dance, gastronomy, storytelling and clowning. There are 32 participants: 13 PWD, 14 stroke survivors and 5 older adults with no diagnosis of neurological conditions. All participants were selected considering social vulnerability determinants: income, race, gender and educational background. Participants were divided into four groups, each with a fixed team (students of Speech Therapy, Psychology, Dance and Dramatic Arts) and moving members. So far, seven meetings took place. The activities have provided different opportunities for sharing memories, experiencing and expressing emotions through art. Participants reported looking forward to the meetings, with increasing participation and bonding. A major concern has been digital inclusion: stable internet access, camera and microphone management. Those aspects directly affect participants' ability to engage in group dynamics and potentially impact their self‐esteem and well‐being. However, improvements are observed on a daily basis, thanks to the combined efforts of team members and caregivers. The project has provided participants with means for self‐expression and social interaction in a safe environment. Perceived difficulties thus far point toward the need for continued efforts in terms of social and digital inclusion for this population currently and beyond the pandemic setting.