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“Reluctant to Assess Pain”: A Qualitative Study of Health Care Professionals’ Beliefs About the Role of Pain in Juvenile Idiopathic Arthritis
Author(s) -
Lee Rebecca Rachael,
Rashid Amir,
Thomson Wendy,
Cordingley Lis
Publication year - 2020
Publication title -
arthritis care and research
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.032
H-Index - 163
eISSN - 2151-4658
pISSN - 2151-464X
DOI - 10.1002/acr.23827
Subject(s) - medicine , pain assessment , qualitative research , physical therapy , arthritis , prioritization , health care , pain catastrophizing , juvenile , pain management , chronic pain , social science , management science , sociology , economic growth , economics , immunology , biology , genetics
Objective Reducing pain is one of the main health priorities for children and young people with juvenile idiopathic arthritis ( JIA ); however, some studies indicate that pain is not routinely assessed in this patient group. The aim of this study was to explore health care professionals’ ( HCP s) beliefs about the role of pain and the prioritization of its assessment in children and young people with JIA . Methods Semi‐structured interviews were conducted with HCP s who manage children and young people with JIA in the UK (including consultant and trainee pediatric rheumatologists, nurses, physical therapists, and occupational therapists). Data were analyzed qualitatively following a framework analysis approach. Results Twenty‐one HCP s participated. Analyses of the data identified 6 themes, including lack of training and low confidence in pain assessment, reluctance to engage in pain discussions, low prioritization of pain assessment, specific beliefs about the nature of pain in JIA , treatment of pain in JIA , and undervaluing pain reports. Assessment of pain symptoms was regarded as a low priority and some HCP s actively avoided conversations about pain. Conclusion These findings indicate that the assessment of pain in children and young people with JIA may be limited by knowledge, skills, and attitudinal factors. HCP s’ accounts of their beliefs about pain in JIA and their low prioritization of pain in clinical practice suggest that a shift in perceptions about pain management may be helpful for professionals managing children and young people with this condition.