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Social Role Participation and Satisfaction With Life: A Study Among Patients With Ankylosing Spondylitis and Population Controls
Author(s) -
Genderen Simon,
Plasqui Guy,
Heijde Désirée,
Gaalen Floris,
Heuft Liesbeth,
Luime Jolanda,
Spoorenberg Anneke,
Arends Suzanne,
Lacaille Diane,
Gignac Monique,
Landewé Robert,
Boonen Annelies
Publication year - 2018
Publication title -
arthritis care and research
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.032
H-Index - 163
eISSN - 2151-4658
pISSN - 2151-464X
DOI - 10.1002/acr.23304
Subject(s) - medicine , ankylosing spondylitis , life satisfaction , population , interpersonal communication , interpersonal relationship , association (psychology) , social engagement , demography , quality of life (healthcare) , gerontology , physical therapy , psychology , social psychology , environmental health , social science , sociology , psychotherapist , nursing
Objective Participation in society of persons with chronic diseases receives increasing attention. However, little is known about which components of participation are most relevant to life satisfaction. This study examines the association between several aspects of social role participation and satisfaction with life ( SWL ) in patients with ankylosing spondylitis ( AS ) compared to population controls. Methods In a cross‐sectional study, participants completed the Social Role Participation Questionnaire ( SRPQ ) and SWL scale. The SRPQ assesses several dimensions of participation (importance, satisfaction with performance, and satisfaction with time and physical difficulty) in 11 roles representing 3 domains (interpersonal relations, leisure, and work). For individuals with AS and controls, the association between role domains and SWL was examined using linear regression for each participation dimension separately, in the total and the employed population, adjusting for age, sex, education, and income. Results A total of 246 AS patients (mean ± SD age 51 ± 12 years, 62% males, mean ± SD disease duration 17 ± 12 years) and 510 controls (mean ± SD age 42 ± 15 years, 70% males) were included. AS patients were more frequently (extremely) dissatisfied with life (17.9% versus 8.6%; P < 0.05). In the total and the employed population, less physical difficulty and higher satisfaction with interpersonal relations and leisure were associated with higher SWL , and this was somewhat stronger in patients than in controls ( P < 0.1). In employed controls, but not in employed patients, satisfaction with work was independently associated with SWL . Conclusion These findings highlight the importance of supporting persons with AS in ameliorating social role participation, particularly in areas like close relationships and leisure activities, which are typically ignored when treating AS .