Premium
The Miami Pediatric Quality of Life Questionnaire: Parent scale
Author(s) -
Armstrong F. Daniel,
Toledano Stuart R.,
Miloslavich Katya,
LackmanZeman Lori,
Levy Jacqueline D.,
Gay Caryl L.,
Schuman Wendy B.,
Fishkin Peter E.
Publication year - 1999
Publication title -
international journal of cancer
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.475
H-Index - 234
eISSN - 1097-0215
pISSN - 0020-7136
DOI - 10.1002/(sici)1097-0215(1999)83:12+<11::aid-ijc4>3.0.co;2-8
Subject(s) - medicine , clinical psychology , quality of life (healthcare) , internal consistency , pediatric cancer , competence (human resources) , psychometrics , psychology , cancer , social psychology , nursing
Because there were limited measures available to assess health‐related quality of life (HRQL) in children with chronic illnesses, this study was initiated to develop an empirically derived questionnaire for use in evaluating HRQL issues in children treated for cancer. Extensive interviews were conducted with 30 families of children with cancer, 10 of pre‐school age, 10 of school age and 10 of adolescent age. Responses were videotaped and transcribed, then categorized to develop a pool of 56 items, which were administered to 132 children with cancer and to their parents. This report focuses on parental responses to objective items and ratings of importance of each of these items. Three primary categories, Self‐Competence, Emotional Stability and Social Competence, were identified, each of which had solid internal consistency, sensitivity and reliability across 1‐month intervals. The measure demonstrated the ability to discriminate between children with different types of cancer, offers an alternative to measures relying on expert judgment to assess HRQL and may lead to greater inclusion of psychological and social concerns as primary factors in determining HRQL in children participating in clinical trials. Int. J. Cancer Suppl. 12:11–17, 1999. ©1999 Wiley‐Liss, Inc.