UM MARCO CONCEITUAL PARA O CUIDADO AO FAMILIAR DA CRIANÇA COM CARDIOPATIA CONGÊNITA À LUZ DA TEORIA DE ROY

This study searches to delineate a conceptual framework for the family member’s care of the child with congenital heart disease, supported by Roy’s theory, which offers conceptions that are grounded in the adaptation process and allows the understanding of the being as a wholly affected person. It describes the concepts that permeate the conceptual framework and its application in a specific care area of the family member of the child with congenital heart disease. It makes clear that the transitional care favors the parent to undergo the child’s health-disease transition, once it involves behaviors that enable personalized, individualized care, helping the being to accomplish a harmonious process with development of his/her potential to regain the lost balance.