Epidermolysis Bullosa - Why Does a Multidisciplinary Team Approach Matter?

Epidermolysis bullosa (EB) is a rare inherited group of mechanobullous genodermatoses. It is known to be one of the most devastating chronic conditions due to its frequent and detrimental cutaneous and extracutaneous complications. Current treatment is aimed at optimizing the quality-of-life and effectively managing the EB associated complications. In order to provide the best possible care, clinicians need to recognize and appreciate that different subtypes of EB carry different associated co-morbidities. The complexity of medical care in these patients warrants a regular review by a multidisciplinary team experienced in EB. Optimal collaboration and coordination between professionals in the delivery of integrated care is essential for the provision of high-quality care in patients with EB