Health Care Transitions for Children with Sickle Cell Disease: Interventions, Perspectives of Health Care Providers and Caregivers

Sickle Cell disease (SCD) is a chronic, inherited hemoglobin disorder associated with lifelong severe and life-threatening complications in neonates, pediatrics, and transitioning young adults (1). These chronic severe complications include anemia, episodic intense pains, stroke, priapism, infections, organ failure, tissue damage, increased morbidity, and premature death while transiting from pediatric to adults. The incapacitating episodic complications associated with the SCD limited the opportunities of those SCD patients in education, societal roles, career options, and quality of life (QoL) (2).