Family Bonds that Support Coping with Chronic Childhood Illness in the State of Paraíba, Brazil | Zendy

Maria Elizabete de Amorim Silva | Zendy; Isabelle Pimentel Gomes | Zendy; Vanessa Medeiros da Nóbrega | Zendy; Amanda Narciso Machado | Zendy; Elenice Maria Cecchetti Vaz | Zendy; Neusa Collet | Zendy

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Family Bonds that Support Coping with Chronic Childhood Illness in the State of Paraíba, Brazil

Author(s) -

Maria Elizabete de Amorim Silva,

Isabelle Pimentel Gomes,

Vanessa Medeiros da Nóbrega,

Amanda Narciso Machado,

Elenice Maria Cecchetti Vaz,

Neusa Collet

Publication year - 2016

Publication title -

international archives of medicine

Language(s) - English

Resource type - Journals

ISSN - 1755-7682

DOI - 10.3823/1962

Subject(s) - coping (psychology) , social support , medicine , thematic analysis , exploratory research , family support , qualitative research , health care , perspective (graphical) , nursing , developmental psychology , clinical psychology , psychology , social psychology , social science , artificial intelligence , sociology , economic growth , anthropology , computer science , economics , physical therapy

Objective: Identify family bonds that support coping with chronic childhood illness from the perspective of comprehensive care. Method: This exploratory and descriptive study with a qualitative approach was performed in a public hospital in the Brazilian state of Paraiba between December 2011 and March 2012 through semi-structured interviews with mothers of chronically ill children. Thematic analysis was used for the interpretation of the data. Results: The support bonds constituted by the family include the nuclear and extended family; friends; neighbours; the government; healthcare professionals; and mothers who share the same experience. The social support provided falls under different dimensions, such as instrumental support, emotional support, informational support, reinforcement, and positive social interaction. Conclusion: Knowing the bonds that support families coping with chronic illness and their demands for attention and support is fundamental for providing comprehensive and humanised healthcare to those involved in this trajectory.

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