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Over the last 50 years, clinical research investigating new treatments has been transforming the care of patients with haemophilia but we still have a long way to go and most clinical investigators are facing difficulties in recruiting appropriate candidates. A survey was conducted to evaluate what motivates people with haemophilia to participate in clinical research and to identify factors that might influence their willingness to participate.

Participation of people with haemophilia in clinical trials of new treatments: an investigation of patients' motivations and existing barriers.