Participation of people with haemophilia in clinical trials of new treatments: an investigation of patients' motivations and existing barriers. | Zendy

Séverine Henrard | Zendy; Niko Speybroeck | Zendy; Cédric Hermans | Zendy

Open Access

Participation of people with haemophilia in clinical trials of new treatments: an investigation of patients' motivations and existing barriers.

Author(s) -

Séverine Henrard,

Niko Speybroeck,

Cédric Hermans

Publication year - 2015

Publication title -

pubmed

Language(s) - English

Resource type - Journals

eISSN - 2385-2070

pISSN - 1723-2007

DOI - 10.2450/2014.0152-14

Subject(s) - haemophilia , medicine , modalities , clinical trial , family medicine , clinical research , physical therapy , pediatrics , social science , sociology

Over the last 50 years, clinical research investigating new treatments has been transforming the care of patients with haemophilia but we still have a long way to go and most clinical investigators are facing difficulties in recruiting appropriate candidates. A survey was conducted to evaluate what motivates people with haemophilia to participate in clinical research and to identify factors that might influence their willingness to participate.

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