The Italian National Rare Diseases Registry. | Zendy

Domenica Taruscio | Zendy; Yllka Kodra | Zendy; Gianluca Ferrari | Zendy; Luciano Vittozzi | Zendy

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The Italian National Rare Diseases Registry.

Author(s) -

Domenica Taruscio,

Yllka Kodra,

Gianluca Ferrari,

Luciano Vittozzi

Publication year - 2014

Publication title -

pubmed

Language(s) - English

Resource type - Journals

eISSN - 2385-2070

pISSN - 1723-2007

DOI - 10.2450/2014.0064-14s

Subject(s) - medicine , disease registry , rare disease , epidemiology , medical diagnosis , data quality , european commission , patient registry , commission , family medicine , quality (philosophy) , pediatrics , disease , medical emergency , european union , environmental health , pathology , business , metric (unit) , philosophy , finance , marketing , epistemology , economic policy

Rare disease registries are a priority at European level and specific actions are being implemented by the European Commission to support their development.In Italy, a National Registry of rare diseases has been established in 2001 as a network of regional registries. The latter have gradually been established and the full coverage of the Italian territory was attained during 2011.

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