Reimagining Human Research Protections for 21st Century Science | Zendy

Cinnamon S. Bloss | Zendy; Camille Nebeker | Zendy; Matthew J. Bietz | Zendy; Deborah Bae | Zendy; Barbara G. Bigby | Zendy; Mary Devereaux | Zendy; James H. Fowler | Zendy; Ann Waldo | Zendy; Nadir Weibel | Zendy; Kevin Patrick | Zendy; Scott Klemmer | Zendy; Lori Melichar | Zendy

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Reimagining Human Research Protections for 21st Century Science

Author(s) -

Cinnamon S. Bloss,

Camille Nebeker,

Matthew J. Bietz,

Deborah Bae,

Barbara G. Bigby,

Mary Devereaux,

James H. Fowler,

Ann Waldo,

Nadir Weibel,

Kevin Patrick,

Scott Klemmer,

Lori Melichar

Publication year - 2016

Publication title -

journal of medical internet research

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 1.446

H-Index - 142

eISSN - 1439-4456

pISSN - 1438-8871

DOI - 10.2196/jmir.6634

Subject(s) - human research , engineering ethics , institutional review board , research ethics , process (computing) , knowledge management , sociology , engineering management , public relations , computer science , engineering , political science , psychology , psychiatry , operating system

Background Evolving research practices and new forms of research enabled by technological advances require a redesigned research oversight system that respects and protects human research participants. Objective Our objective was to generate creative ideas for redesigning our current human research oversight system. Methods A total of 11 researchers and institutional review board (IRB) professionals participated in a January 2015 design thinking workshop to develop ideas for redesigning the IRB system. Results Ideas in 5 major domains were generated. The areas of focus were (1) improving the consent form and process, (2) empowering researchers to protect their participants, (3) creating a system to learn from mistakes, (4) improving IRB efficiency, and (5) facilitating review of research that leverages technological advances. Conclusions We describe the impetus for and results of a design thinking workshop to reimagine a human research protections system that is responsive to 21st century science.

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