What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives | Zendy

Anne Hogden | Zendy; David Greenfield | Zendy; Nugus | Zendy; Matthew C. Kiernan | Zendy

Open Access

What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives

Author(s) -

Anne Hogden,

David Greenfield,

Nugus,

Matthew C. Kiernan

Publication year - 2012

Publication title -

patient preference and adherence

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 0.885

H-Index - 48

ISSN - 1177-889X

DOI - 10.2147/ppa.s37851

Subject(s) - medicine , amyotrophic lateral sclerosis , multidisciplinary approach , physical medicine and rehabilitation , intensive care medicine , neuroscience , disease , pathology , social science , sociology , biology

Patients with amyotrophic lateral sclerosis (ALS) are required to make decisions concerning quality of life and symptom management over the course of their disease. Clinicians perceive that patients' ability to engage in timely decision-making is extremely challenging. However, we lack patient perspectives on this issue. This study aimed to explore patient experiences of ALS, and to identify factors influencing their decision-making in the specialized multidisciplinary care of ALS.

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