The Role of Community Advisory Boards: Involving Communities in the Informed Consent Process | Zendy

Ronald P. Strauss | Zendy; Sohini Sengupta | Zendy; Sandra Crouse Quinn | Zendy; Jean Goeppinger | Zendy; Cora Spaulding | Zendy; Susan M. Kegeles | Zendy; Gregorio A. Millett | Zendy

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The Role of Community Advisory Boards: Involving Communities in the Informed Consent Process

Author(s) -

Ronald P. Strauss,

Sohini Sengupta,

Sandra Crouse Quinn,

Jean Goeppinger,

Cora Spaulding,

Susan M. Kegeles,

Gregorio A. Millett

Publication year - 2001

Publication title -

american journal of public health

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 2.284

H-Index - 264

eISSN - 1541-0048

pISSN - 0090-0036

DOI - 10.2105/ajph.91.12.1938

Subject(s) - informed consent , autonomy , psychology , process (computing) , research ethics , institutional review board , advisory committee , medical education , medicine , alternative medicine , political science , law , psychiatry , computer science , public administration , pathology , operating system

Ethical research involving human subjects mandates that individual informed consent be obtained from research participants or from surrogates when participants are not able to consent for themselves. The existing requirements for informed consent assume that all study participants have personal autonomy; fully comprehend the purpose, risks, and benefits of the research; and volunteer for projects that disclose all relevant information. Yet contemporary examples of lapses in the individual informed consent process have been reported. The authors propose the use of community advisory boards, which can facilitate research by providing advice about the informed consent process and the design and implementation of research protocols. These activities could help reduce the number of individual informed consent lapses, benefiting study participants and the scientific integrity of the research in question.

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