Public participation in medical policy-making and the status of consumer autonomy: the example of newborn-screening programs in the United States. | Zendy

Elaine Hiller | Zendy; Gretchen Landenburger | Zendy; Marvin R. Natowicz | Zendy

Open Access

Public participation in medical policy-making and the status of consumer autonomy: the example of newborn-screening programs in the United States.

Author(s) -

Elaine Hiller,

Gretchen Landenburger,

Marvin R. Natowicz

Publication year - 1997

Publication title -

american journal of public health

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 2.284

H-Index - 264

eISSN - 1541-0048

pISSN - 0090-0036

DOI - 10.2105/ajph.87.8.1280

Subject(s) - newborn screening , autonomy , family medicine , genetic testing , medicine , public health , public policy , state (computer science) , informed consent , political science , pediatrics , nursing , law , alternative medicine , algorithm , pathology , computer science

State newborn-screening programs collectively administer the largest genetic-testing initiative in the United States. We sought to assess public involvement in formulating and implementing medical policy in this important area of genetic medicine.

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