Systematic assessment of health care perception in adults with congenital heart disease in Germany | Zendy

Rhoia Neidenbach | Zendy; Stephan Achenbach | Zendy; Caroline Andonian | Zendy; Ulrike Bauer | Zendy; Peter Ewert | Zendy; Sebastian Freilinger | Zendy; Ulrike Gundlach | Zendy; Ann-Sophie Kaemmerer | Zendy; Nicole Nagdyman | Zendy; Kathrin Nebel | Zendy; Renate Oberhoffer | Zendy; Lars Pieper | Zendy; Wibke Reinhard | Zendy; Linda Sanftenberg | Zendy; Fabian von Scheidt | Zendy; Jörg Schelling | Zendy; Lavinia Seidel | Zendy; Michael Weyand | Zendy; Harald Kaemmerer | Zendy

AI Assistant Blog Pricing

Home ZAIA Blog

Open Access

Systematic assessment of health care perception in adults with congenital heart disease in Germany

Author(s) -

Rhoia Neidenbach,

Stephan Achenbach,

Caroline Andonian,

Ulrike Bauer,

Peter Ewert,

Sebastian Freilinger,

Ulrike Gundlach,

Ann-Sophie Kaemmerer,

Nicole Nagdyman,

Kathrin Nebel,

Renate Oberhoffer,

Lars Pieper,

Wibke Reinhard,

Linda Sanftenberg,

Fabian von Scheidt,

Jörg Schelling,

Lavinia Seidel,

Michael Weyand,

Harald Kaemmerer

Publication year - 2021

Publication title -

cardiovascular diagnosis and therapy

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 0.83

H-Index - 22

eISSN - 2223-3660

pISSN - 2223-3652

DOI - 10.21037/cdt-20-825

Subject(s) - medicine , heart disease , rehabilitation , disease , health care , family medicine , physical therapy , gerontology , pediatrics , economics , economic growth

The number of adults with congenital heart disease (ACHD) is steadily rising due to increased survival rate and improved medical resources. Accordingly, more than 330,000 ACHD are currently living in Germany. Almost all of them require lifelong specialized medical follow-up for their chronic heart disease, often accompanied by residua, sequelae, or comorbidities. Primary care physicians (PCPs) are a crucial factor in directing patients to ACHD specialists or specialized institutions, but despite all efforts, the number of ACHD under specialized care is low, the lost-to-follow-up rate is high, and the morbidity and mortality is substantial. The present cross-sectional study was designed to systematically characterize the health care of ACHD from a patient perspective, including (I) use of medical care by ACHD, (II) medical counselling needs, and (III) perceived satisfaction with health care.

The content you want is available to Zendy users.

Already have an account? Click here to sign in.

Having issues? You can contact us here

Accelerating Research