Optimizing future planning in Parkinson disease: suggestions for a comprehensive roadmap from patients and care partners | Zendy

Sarah Jordan | Zendy; Benzi M. Kluger | Zendy; Roman Ayele | Zendy; Adreanne Brungardt | Zendy; Anne E. Hall | Zendy; J. K. N. Jones | Zendy; Maya Katz | Zendy; Janis M. Miyasaki | Zendy; Hillary D. Lum | Zendy

Open Access

Optimizing future planning in Parkinson disease: suggestions for a comprehensive roadmap from patients and care partners

Author(s) -

Sarah Jordan,

Benzi M. Kluger,

Roman Ayele,

Adreanne Brungardt,

Anne E. Hall,

J. K. N. Jones,

Maya Katz,

Janis M. Miyasaki,

Hillary D. Lum

Publication year - 2020

Publication title -

annals of palliative medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 0.546

H-Index - 19

eISSN - 2224-5839

pISSN - 2224-5820

DOI - 10.21037/apm.2019.09.10

Subject(s) - advance care planning , thematic analysis , medicine , palliative care , nursing , qualitative research , social science , sociology

Living with Parkinson disease (PD) is complicated by an unpredictable disease course which can delay planning for future needs. This study explores patient and care partner needs related to future planning using a palliative care framework with physical, psychological, social, cultural, end-of-life, and ethical aspects of care in PD to guide analysis.

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