Toward Reducing Health Information Inequities in the Caribbean: Our Experience Building a Participatory Health Informatics Project | Zendy

Karen Wang | Zendy; Ian Hambleton | Zendy; Erika Linnander | Zendy; Luis Marenco | Zendy; Saria Hassan | Zendy; M.R. Shantha Kumara | Zendy; Lyna E. Fredericks | Zendy; Saida Harrigan | Zendy; Trevor Hassell | Zendy; Cynthia Brandt | Zendy; Marcella Nuñez-Smith | Zendy

Open Access

Toward Reducing Health Information Inequities in the Caribbean: Our Experience Building a Participatory Health Informatics Project

Author(s) -

Karen Wang,

Ian Hambleton,

Erika Linnander,

Luis Marenco,

Saria Hassan,

M.R. Shantha Kumara,

Lyna E. Fredericks,

Saida Harrigan,

Trevor Hassell,

Cynthia Brandt,

Marcella Nuñez-Smith

Publication year - 2020

Publication title -

ethnicity and disease

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 0.767

H-Index - 67

eISSN - 1945-0826

pISSN - 1049-510X

DOI - 10.18865/ed.30.s1.193

Subject(s) - health equity , health informatics , leverage (statistics) , health information technology , participatory action research , informatics , citizen journalism , business , health care , computer science , political science , economic growth , world wide web , economics , law , machine learning

Precision medicine seeks to leverage technology to improve the health for all individuals. Successful health information systems rely fundamentally on the integration and sharing of data from a range of disparate sources. In many settings, basic infrastructure inequities exist that limit the usefulness of health information systems. We discuss the work of the Yale Transdisciplinary Collaborative Center for Health Disparities focused on Precision Medicine, which aims to improve the health of people in the Caribbean and Caribbean diaspora by leveraging precision medicine approaches. We describe a participatory informatics approach to sharing data as a potential mechanism to reducing inequities in the existing data infrastructure.

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