Parent Experience With False-Positive Newborn Screening Results for Cystic Fibrosis | Zendy

Robin Z. Hayeems | Zendy; Fiona A. Miller | Zendy; Carolyn J. Barg | Zendy; Yvonne Bombard | Zendy; Elizabeth N. Kerr | Zendy; Karen Tam | Zendy; June C. Carroll | Zendy; Beth K. Potter | Zendy; Pranesh Chakraborty | Zendy; Christine Davies | Zendy; Jennifer Milburn | Zendy; Sarah Patton | Zendy; Jessica Bytautas | Zendy; Louise Taylor | Zendy; April Price | Zendy; Tanja Gonska | Zendy; Katherine Keenan | Zendy; Félix Ratjen | Zendy; Astrid Guttmann | Zendy

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Parent Experience With False-Positive Newborn Screening Results for Cystic Fibrosis

Author(s) -

Robin Z. Hayeems,

Fiona A. Miller,

Carolyn J. Barg,

Yvonne Bombard,

Elizabeth N. Kerr,

Karen Tam,

June C. Carroll,

Beth K. Potter,

Pranesh Chakraborty,

Christine Davies,

Jennifer Milburn,

Sarah Patton,

Jessica Bytautas,

Louise Taylor,

April Price,

Tanja Gonska,

Katherine Keenan,

Félix Ratjen,

Astrid Guttmann

Publication year - 2016

Publication title -

pediatrics

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 2.611

H-Index - 345

eISSN - 1098-4275

pISSN - 0031-4005

DOI - 10.1542/peds.2016-1052

Subject(s) - medicine , psychosocial , distress , newborn screening , cystic fibrosis , cohort , pediatrics , family medicine , psychiatry , clinical psychology

The risk of psychosocial harm in families of infants with false-positive (FP) newborn bloodspot screening (NBS) results for cystic fibrosis (CF) is a longstanding concern. Whether well designed retrieval and confirmatory testing systems can mitigate risks remains unknown.

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