Open AccessEthical and Policy Issues in Genetic Testing and Screening of Children
Author(s) -
Mary E. Fallat,
Aviva L. Katz,
Mark R. Mercurio,
Margaret Moon,
Alexander L. Okun,
Sally A. Webb,
Kathryn L. Weise,
Robert A. Saul,
Stephen R. Braddock,
Emily Chen,
Debra Freedenberg,
Marilyn C. Jones,
James M. Perrin,
Beth A. Tarini,
Karen L. David,
Louis Bartoshesky,
Rebecca Rae Anderson,
Robert G. Best,
Jodi D. Hoffman,
Masamichi Ito,
Amy A. Lemke,
Mitzi L. Murray,
Richard R. Sharp,
Vikas Bhambhani
Publication year - 2013
Publication title -
pediatrics
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 2.611
H-Index - 345
eISSN - 1098-4275
pISSN - 0031-4005
DOI - 10.1542/peds.2012-3680
Subject(s) - medicine , genetic testing , psychosocial , medical genetics , screening test , newborn screening , genetic counseling , family medicine , pediatrics , psychiatry , genetics , biology , gene
The genetic testing and genetic screening of children are commonplace. Decisions about whether to offer genetic testing and screening should be driven by the best interest of the child. The growing literature on the psychosocial and clinical effects of such testing and screening can help inform best practices. This policy statement represents recommendations developed collaboratively by the American Academy of Pediatrics and the American College of Medical Genetics and Genomics with respect to many of the scenarios in which genetic testing and screening can occur.
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