Two cheers for GINA? | Zendy

Amy L. McGuire | Zendy; Mary A. Majumder | Zendy

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Two cheers for GINA?

Author(s) -

Amy L. McGuire,

Mary A. Majumder

Publication year - 2009

Publication title -

genome medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 5.564

H-Index - 89

ISSN - 1756-994X

DOI - 10.1186/gm6

Subject(s) - genetic testing , worry , genetic discrimination , medicine , public health , public opinion , political science , law , psychiatry , nursing , anxiety , politics

The Genetic Information Nondiscrimination Act of 2008 (GINA) was recently enacted in the United States. Its supporters have applauded the passage of GINA, and they hope that it will alleviate public fear about genetic discrimination and facilitate genetic testing and participation in genetic research. Critics worry that GINA does not provide adequate protection because it fails to address discrimination on the basis of non-genetic health-related information, and it only regulates the use of genetic information in health insurance and employment. Despite these limitations, GINA represents a major step forward in US policy. Additional research is needed to assess the impact of GINA on industry practice and public opinion. In the mean time, education about GINA and its limitations can help individuals make more informed decisions about genetic testing and participation in genetic research.

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