Open AccessThe self versus proxy report conundrum in juvenile idiopathic arthritis: implications for a cost‐effectiveness analysis of integrated podiatry care
Author(s) -
Hendry Gordon J,
GardnerMedwin Janet,
Turner Debbie E,
Woodburn Jim,
Lorgelly Paula K
Publication year - 2011
Publication title -
journal of foot and ankle research
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.763
H-Index - 39
ISSN - 1757-1146
DOI - 10.1186/1757-1146-4-s1-p26
Subject(s) - medicine , podiatry , proxy (statistics) , juvenile , arthritis , health care , quality of life (healthcare) , rehabilitation , family medicine , physical therapy , alternative medicine , nursing , pathology , machine learning , biology , computer science , genetics , economics , economic growth
Background JIA is associated with impaired health-related quality of life (HRQoL). Proxy reporting of health outcomes such as HRQoL is often required in the paediatric setting. However there is uncertainty regarding whether selfor proxyreported HRQoL should be used in health economic analyses, as perceptions of well-being may differ between parent and child. The aim of this study was to estimate levels of agreement and association between selfand proxy-reported HRQoL in JIA.