Open AccessPatient-identified burden and unmet needs in patients with cluster headache: An evidence-based qualitative literature review
Author(s) -
Emily Freeman,
Michael Adair,
Dori Beeler,
Rozanne Casper,
Melissa P Herman,
David Reeves,
Stefan Reinsch
Publication year - 2022
Publication title -
cephalalgia reports
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.125
H-Index - 1
ISSN - 2515-8163
DOI - 10.1177/25158163221096866
Subject(s) - cinahl , psychosocial , medline , quality of life (healthcare) , critical appraisal , medicine , disease , data extraction , perspective (graphical) , comprehension , psychology , gerontology , psychiatry , alternative medicine , psychological intervention , nursing , pathology , linguistics , philosophy , artificial intelligence , political science , computer science , law
Objectives: To qualitatively identify evidence-based literature related to the daily burden and unmet treatment and psychosocial needs of patients with cluster headache (CH).Methods: A literature search was conducted through October 20, 2020 across MEDLINE, EMBASE, CINAHL, and PsychInfo databases exploring quality of life (QoL) and disease burden in adults with CH. The search was restricted to full-text reports in peer-reviewed journals. Methodologic quality was assessed using the Critical Skills Appraisal Program.Results: From 11 identified publications, QoL was reduced in persons living with CH, with significant psychological, social, and socio-economic burdens, and work-related disability. The CH disease trajectory is complex, with patients experiencing the impact of their disease across multiple domains beyond the biological manifestation of the disease including stigma, employment limitations, and suicidal ideation, and with a lack of effective treatment from the patient perspective.Discussion: These findings strengthen comprehension of the CH patient experience, enabling a deeper understanding of the patients’ perspective and experience of their disease andunmet needs, providing a basis for future research into this debilitating condition. Minor limitations of this study include data extraction and study selection biases.