Open AccessParent/Guardian Experiences With the Healthcare System and Community Supports for Pediatric Asthma Management
Author(s) -
Laura Rolke,
Sarah Griffin,
Joel R. Hamilton,
Rachel Mayo,
Joel E. Williams,
Lior Rennert,
Kerry Sease
Publication year - 2022
Publication title -
journal of patient experience
Language(s) - English
Resource type - Journals
eISSN - 2374-3743
pISSN - 2374-3735
DOI - 10.1177/23743735221089458
Subject(s) - guardian , asthma , medicaid , medicine , health literacy , family medicine , literacy , self management , legal guardian , health care , psychology , pedagogy , machine learning , political science , computer science , law , economics , economic growth
Determinants of pediatric asthma management include child, family, healthcare, and community factors. The purpose of this study is to investigate how parents/guardians are impacted by and act on these factors to aid in their child’s asthma self-management. Interviews were conducted in Fall 2020 with 12 female parents/guardians of Black/African American children who participated in a community paramedic pilot study with their child in South Carolina. Children in the initial study had an asthma diagnosis of moderate persistent asthma, had Medicaid insurance, and were determined high-risk for emergency room presentation. Inductive and deductive qualitative analysis identified that child management self-efficacy and independence, parent/guardian health literacy, parent and child negative experiences related to asthma diagnosis and management, asthma management tools, and social support from multiple sources impact child self-management. Findings from this study highlight the importance of clear asthma education and management tool recommendations from healthcare and community providers, particularly for parents/guardians with low health literacy. Health literacy impacted parental responses and likely how families comprehend Medicaid and clinical asthma guidance.