Open AccessA community-engaged approach to examining barriers and facilitators to accessing autism services in Korean immigrant families
Author(s) -
Vanessa C. Fong,
Bo Sang Lee,
Grace Iarocci
Publication year - 2021
Publication title -
autism
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.899
H-Index - 96
eISSN - 1461-7005
pISSN - 1362-3613
DOI - 10.1177/13623613211034067
Subject(s) - autism , service provider , psychology , immigration , mental health , perception , cultural diversity , language barrier , stigma (botany) , cultural competence , service (business) , nursing , developmental psychology , medicine , psychiatry , sociology , pedagogy , political science , business , marketing , neuroscience , anthropology , law
Perceptions and experiences of culturally and linguistically diverse groups in accessing autism services in Canada are extremely limited. Thus, this study partnered with a community member to explore Korean immigrant parents' perceptions of barriers and facilitators to accessing autism services in British Columbia, Canada. Interviews were conducted with 20 Korean parents of autistic children. Barriers and facilitators at the system, provider, and family/cultural level were identified. Barriers at the system level included delays and waitlists for services, and ineffective school policies to address child behavioral challenges. At the provider level, barriers included a lack of qualified professionals, negative attitudes, and lack of guidance navigating services. For family/cultural-related barriers, these included language and communication difficulties, out-of-pocket costs, and stigma impeded service access. Facilitators at the system level included family-centered care and prioritization of mental health supports. At the provider level, strengths included culturally competent and bilingual professionals. The family/cultural-related facilitators identified were informal support networks, characteristics of the parent, and connections to cultural community organizations. The findings emphasize the need to understand and consider diverse experiences, preferences, and values in the design and provision of autism services for families and their children.