Open AccessPsychological and Physical Health Outcomes in Adults With Craniosynostosis
Author(s) -
Nicola Marie Stock,
Bruna Costa,
Karen Wilkinson-Bell,
Laura Culshaw,
Anna Kearney,
Wendy Edwards
Publication year - 2021
Publication title -
the cleft palate-craniofacial journal
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.641
H-Index - 79
eISSN - 1545-1569
pISSN - 1055-6656
DOI - 10.1177/10556656211059966
Subject(s) - medicine , craniosynostosis , anxiety , mental health , population , clinical psychology , craniofacial , psychological resilience , psychiatry , psychology , social psychology , surgery , environmental health
Within current research, little is known about the long-term outcomes of craniosynostosis. A priority-setting exercise by UK charity Headlines Craniofacial Support identified 2 key questions in this area: (1) What are the long-term physical and psychological effects for individuals with syndromic and non-syndromic craniosynostosis? and (2) Are individuals with craniosynostosis likely to suffer from mental health difficulties, or are they more resilient? The aim of the current study was to conduct an initial investigation of these priority questions.