Insights From African American Older Adults on Brain Health Research Engagement: “Need to See the Need” | Zendy

Shoshana H. Bardach | Zendy; Markeda Yarbrough | Zendy; Charlene Walker | Zendy; Doris Love Alfred | Zendy; Eseosa T. Ighodaro | Zendy; Marc T. Kiviniemi | Zendy; Gregory A. Jicha | Zendy

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Insights From African American Older Adults on Brain Health Research Engagement: “Need to See the Need”

Author(s) -

Shoshana H. Bardach,

Markeda Yarbrough,

Charlene Walker,

Doris Love Alfred,

Eseosa T. Ighodaro,

Marc T. Kiviniemi,

Gregory A. Jicha

Publication year - 2020

Publication title -

journal of applied gerontology

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 0.857

H-Index - 50

eISSN - 1552-4523

pISSN - 0733-4648

DOI - 10.1177/0733464820902002

Subject(s) - photovoice , community based participatory research , dementia , psychology , session (web analytics) , participatory action research , health equity , community engagement , gerontology , medical education , medicine , disease , nursing , public health , sociology , public relations , political science , pathology , world wide web , anthropology , computer science , economics , economic growth

African Americans (AAs) have an elevated risk of developing dementia, yet are underrepresented in clinical research. This project uses a community-engaged photovoice approach to add to existing understanding of barriers and facilitators to AA participation in Alzheimer's disease research and identify strategies to enhance engagement. Three AA research advocates served as community facilitators to identify and guide groups of AA adults through an eight to nine session photovoice project. Group sessions involved discussions and sharing of images pertaining to various prompts in the area of brain health and research participation. Sessions were audiotaped and transcribed verbatim. Participants identified three categories of barriers to AA research participation: (a) Mistrust, (b) avoidance and fear of acknowledging problems, and (c) seeing the risks of research but not the need. Participants shared suggestions and approaches for ameliorating each of these barriers. This process revealed unique insights into barriers and opportunities for increasing AA engagement in aging and dementia research.

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