Open AccessCaregiver Quality of Life Is Related to Severity of Otitis Media in Children
Author(s) -
Blank Sarah J.,
Grindler David J.,
Schulz Kristine A.,
Witsell David L.,
Lieu Judith E. C.
Publication year - 2014
Publication title -
otolaryngology–head and neck surgery
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.232
H-Index - 121
eISSN - 1097-6817
pISSN - 0194-5998
DOI - 10.1177/0194599814531912
Subject(s) - otitis , quality of life (healthcare) , quality (philosophy) , audiology , psychology , medicine , nursing , physics , surgery , quantum mechanics
Objective Otitis media (OM) in children is the most frequent reason for physician visits in developed countries and burdens caregivers, society, and the child. Our objective was to describe the impact of OM severity on parent/caregiver quality of life (QoL). Study Design Multi‐institutional prospective cross‐sectional study. Setting Otolaryngology, family, and pediatric practices. Subjects and Methods Children 6 to 24 months old with and without a primary diagnosis of recurrent OM and their caregivers. Physicians provided patient history, and parents/caregivers completed a Family Information Form, the PedsQL Family Impact survey, the Patient Reported Outcomes Measurement Information System (PROMIS) survey, and the OM 6‐item severity survey (OM‐6). Results A total of 2413 subjects were enrolled and data from 1208 patients and physician were analyzed. The average child age was 16 months, and 54% were male. The mean OM‐6 score was 3.2. The mean PedsQL Family Impact score for parents was 66.9 from otolaryngology sites and 78.8 from pediatrics/family practice sites ( P <. 001). Higher (worse) OM‐6 scores correlated significantly with worse PedsQL Family Impact scores (Pearson r = −0.512, P <. 01). Similarly, increasing OM‐6 scores strongly correlated with increased parental anxiety, depression, and fatigue, as well as decreased satisfaction (all P <. 01). Conclusions Worse PedsQL Family Impact and PROMIS scores were highly correlated with elevated OM‐6 scores, suggesting that severity of childhood OM significantly affects parent/caregiver QoL. Understanding the impact of a child's illness on parent/caregiver QoL can help physicians counsel patients and families and provide better family‐centered, compassionate care.