Report of the National Heart, Lung, and Blood Institute Working Group | Zendy

Sara K. Pasquali | Zendy; Jeffrey P. Jacobs | Zendy; Gregory K. Farber | Zendy; David Bertoch | Zendy; Elizabeth D. Blume | Zendy; Kristin M. Burns | Zendy; Robert M. Campbell | Zendy; Anthony Chang | Zendy; Wendy K. Chung | Zendy; Tiffany RiehleColarusso | Zendy; Lesley H. Curtis | Zendy; Christopher B. Forrest | Zendy; J. William Gaynor | Zendy; Michael Gaies | Zendy; Alan S. Go | Zendy; Paul Henchey | Zendy; Gerard R. Martin | Zendy; Gail D. Pearson | Zendy; Victoria L. Pemberton | Zendy; Steven M. Schwartz | Zendy; Robert Vincent | Zendy; Jonathan R. Kaltman | Zendy

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Report of the National Heart, Lung, and Blood Institute Working Group

Author(s) -

Sara K. Pasquali,

Jeffrey P. Jacobs,

Gregory K. Farber,

David Bertoch,

Elizabeth D. Blume,

Kristin M. Burns,

Robert M. Campbell,

Anthony Chang,

Wendy K. Chung,

Tiffany RiehleColarusso,

Lesley H. Curtis,

Christopher B. Forrest,

J. William Gaynor,

Michael Gaies,

Alan S. Go,

Paul Henchey,

Gerard R. Martin,

Gail D. Pearson,

Victoria L. Pemberton,

Steven M. Schwartz,

Robert Vincent,

Jonathan R. Kaltman

Publication year - 2016

Publication title -

circulation

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 7.795

H-Index - 607

eISSN - 1524-4539

pISSN - 0009-7322

DOI - 10.1161/circulationaha.115.019506

Subject(s) - medicine , heart disease , lung disease , working group , intensive care medicine , lung , cardiology , computer science , operating system

The National Heart, Lung, and Blood Institute convened a working group in January 2015 to explore issues related to an integrated data network for congenital heart disease research. The overall goal was to develop a common vision for how the rapidly increasing volumes of data captured across numerous sources can be managed, integrated, and analyzed to improve care and outcomes. This report summarizes the current landscape of congenital heart disease data, data integration methodologies used across other fields, key considerations for data integration models in congenital heart disease, and the short- and long-term vision and recommendations made by the working group.

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