Adult Congenital Heart Disease Patients Experience Similar Symptoms of Disease Activity | Zendy

Ari Cedars | Zendy; Ada C. Stefanescu Schmidt | Zendy; Craig S. Broberg | Zendy; Ali N. Zaidi | Zendy; Alexander R. Opotowsky | Zendy; Jasmine Grewal | Zendy; Joseph Kay | Zendy; Ami B. Bhatt | Zendy; Eric Novak | Zendy; John A. Spertus | Zendy

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Adult Congenital Heart Disease Patients Experience Similar Symptoms of Disease Activity

Author(s) -

Ari Cedars,

Ada C. Stefanescu Schmidt,

Craig S. Broberg,

Ali N. Zaidi,

Alexander R. Opotowsky,

Jasmine Grewal,

Joseph Kay,

Ami B. Bhatt,

Eric Novak,

John A. Spertus

Publication year - 2016

Publication title -

circulation cardiovascular quality and outcomes

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 2.692

H-Index - 87

eISSN - 1941-7705

pISSN - 1941-7713

DOI - 10.1161/circoutcomes.115.002154

Subject(s) - medicine , cohort , disease , heart disease , patient reported outcome , prospective cohort study , cohort study , quality of life (healthcare) , physical therapy , pediatrics , nursing

There is a lack of objective data on the symptoms characterizing disease activity among adults with congenital heart disease (ACHD). The purpose of this study was to elicit the most important symptoms from patients across the spectrum of ACHD and to examine whether reported symptoms were similar across the spectrum of ACHD as a foundation for creating a patient-reported outcome measure(s).

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