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Design, Rationale, Methodology, and Aims of a Greek Prospective Idiopathic Pulmonary Fibrosis Registry: Investigating Idiopathic Pulmonary Fibrosis in Greece (INDULGE IPF)
Author(s) -
Demosthenes Bouros,
Zoe Daniil,
Despoina Papakosta,
Katerina M. Antoniou,
Katerina Markopoulou,
Likurgos Kolilekas,
George Konstantopoulos,
Spyros Papiris
Publication year - 2018
Publication title -
respiration
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.264
H-Index - 81
eISSN - 1423-0356
pISSN - 0025-7931
DOI - 10.1159/000487244
Subject(s) - medicine , idiopathic pulmonary fibrosis , epidemiology , pirfenidone , disease , pulmonary fibrosis , interstitial lung disease , fibrosis , intensive care medicine , lung
Idiopathic pulmonary fibrosis (IPF) is a chronic, fibrosing interstitial pneumonia of unknown origin. Despite the fact that the guidelines on the diagnosis and management of the disease were updated in 2015, incorporating novel agents recently introduced in the therapeutic approach of IPF, there is a lack of data on the epidemiology, disease status, and treatment in clinical practice. Contemporary data provided by national registries in IPF provide valuable information to guide clinical management of the disease in the real-world setting, adjusted to the local needs.

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