Testing an Online, Dynamic Consent Portal for Large Population Biobank Research | Zendy

Daniel Thiel | Zendy; Jodyn Platt | Zendy; Tevah Platt | Zendy; Susan B. King | Zendy; Nicole Fisher | Zendy; Robert Shelton | Zendy; Sharon L. R. Kardia | Zendy

AI Assistant Blog Pricing

Home ZAIA Blog

Open Access

Testing an Online, Dynamic Consent Portal for Large Population Biobank Research

Author(s) -

Daniel Thiel,

Jodyn Platt,

Tevah Platt,

Susan B. King,

Nicole Fisher,

Robert Shelton,

Sharon L. R. Kardia

Publication year - 2014

Publication title -

public health genomics

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 0.701

H-Index - 51

eISSN - 1662-8063

pISSN - 1662-4246

DOI - 10.1159/000366128

Subject(s) - biobank , informed consent , family medicine , medicine , population , psychology , internet privacy , environmental health , alternative medicine , computer science , bioinformatics , pathology , biology

Michigan's BioTrust for Health, a public health research biobank comprised of residual dried bloodspot (DBS) cards from newborn screening contains over 4 million samples collected without written consent. Participant-centric initiatives are IT tools that hold great promise to address the consent challenges in biobank research.

The content you want is available to Zendy users.

Already have an account? Click here to sign in.

Having issues? You can contact us here

Accelerating Research