Community Engagement in US Biobanking: Multiplicity of Meaning and Method | Zendy

Kaaren Haldeman | Zendy; R. Jean Cadigan | Zendy; A. Davis | Zendy; Aaron J. Goldenberg | Zendy; Gail E. Henderson | Zendy; Dragana Lassiter | Zendy; Erik Reavely | Zendy

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Community Engagement in US Biobanking: Multiplicity of Meaning and Method

Author(s) -

Kaaren Haldeman,

R. Jean Cadigan,

A. Davis,

Aaron J. Goldenberg,

Gail E. Henderson,

Dragana Lassiter,

Erik Reavely

Publication year - 2014

Publication title -

public health genomics

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 0.701

H-Index - 51

eISSN - 1662-8063

pISSN - 1662-4246

DOI - 10.1159/000357958

Subject(s) - biobank , diversity (politics) , population , medicine , political science , psychology , public relations , environmental health , biology , genetics , law

Efforts to improve individual and population health increasingly rely on large-scale collections of human biological specimens and associated data. Such collections or 'biobanks' are hailed as valuable resources for facilitating translational biomedical research. However, biobanks also raise important ethical considerations, such as whether, how and why biobanks might engage with those who contributed specimens. This paper examines perceptions and practices of community engagement (CE) among individuals who operate 6 diverse biobanks in the US.

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