Challenges of C1-Inhibitor Concentrate Self-Administration
Author(s) -
Henrik Balle Boysen,
L. Bouillet,
Emel AygörenPürsün
Publication year - 2013
Publication title -
international archives of allergy and immunology
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.696
H-Index - 100
eISSN - 1423-0097
pISSN - 1018-2438
DOI - 10.1159/000351238
Subject(s) - hereditary angioedema , self administration , administration (probate law) , medicine , intensive care medicine , quality of life (healthcare) , nursing , immunology , pharmacology , political science , law
Self-administration of therapy can help hereditary angioedema (HAE) patients regain control of their disease or reduce its impact and improve the quality of their lives. However, data from a self-administration survey, and subsequent discussion at an international HAE expert meeting, identified several barriers to self-administration therapy. These barriers include difficulty in administration technique, availability of nursing resources and the mental capacity of the patient. Encouragingly, international HAE experts identified that once a patient has acquired self-administration skills, they generally retain them in the long-term. As patient uptake increases, it was recommended that follow-up management plans should be established to address any issues from the patient's perspective.
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