How to Handle Genetic Information: A Comparison of Attitudes among Patients and the General Population | Zendy

Katharina Wolff | Zendy; Wibecke Brun | Zendy; Gerd Kvale | Zendy; Hans Ehrencrona | Zendy; Maria Soller | Zendy; Karin Nordin | Zendy

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How to Handle Genetic Information: A Comparison of Attitudes among Patients and the General Population

Author(s) -

Katharina Wolff,

Wibecke Brun,

Gerd Kvale,

Hans Ehrencrona,

Maria Soller,

Karin Nordin

Publication year - 2010

Publication title -

public health genomics

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 0.701

H-Index - 51

eISSN - 1662-8063

pISSN - 1662-4246

DOI - 10.1159/000313458

Subject(s) - confidentiality , informed consent , penetrance , population , disease , medicine , genetic counseling , family medicine , coping (psychology) , public health , psychology , social psychology , clinical psychology , environmental health , alternative medicine , nursing , pathology , genetics , biology , political science , law , gene , phenotype

So far there are no studies comparing the attitudes of patients with hereditary conditions to the attitudes of the general public on how to handle genetic risk information which mutation carriers refuse to disclose to relevant family members. The purpose of the present study was to investigate whether such patients and members of the general public want to be informed about the existence of hereditary conditions within their family, and under which conditions they want healthcare providers to breach confidentiality.

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