Open AccessConsiderations for Returning Research Results to Culturally Diverse Participants and Families of Decedents
Author(s) -
Garrison Nanibaa'A.
Publication year - 2015
Publication title -
the journal of law, medicine & ethics
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.515
H-Index - 57
eISSN - 1748-720X
pISSN - 1073-1105
DOI - 10.1111/jlme.12300
Subject(s) - culturally sensitive , cultural diversity , culturally appropriate , psychology , focus (optics) , social psychology , medicine , gerontology , sociology , anthropology , physics , optics
There has been considerable debate on which genomic research results to return to participants and when those results should be returned, but little attention to how those results should be returned, especially to minority and culturally diverse participants. This paper explores the cultural and ethical considerations around returning research results to participants and families of culturally diverse backgrounds, with a special focus on considerations when the research participant is deceased, and raises points for further discussion.