Open AccessA Family‐Centered Model for Sharing Genetic Risk
Author(s) -
Daly Mary B.
Publication year - 2015
Publication title -
the journal of law, medicine & ethics
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.515
H-Index - 57
eISSN - 1748-720X
pISSN - 1073-1105
DOI - 10.1111/jlme.12297
Subject(s) - confidentiality , autonomy , internet privacy , population , disease , genetic testing , genetic discrimination , data sharing , personal genomics , human genome , biology , genetics , genome , political science , sociology , medicine , computer science , law , gene , demography , alternative medicine , pathology
The successes of the Human Genome Project have ushered in a new era of genomic science. To effectively translate these discoveries, it will be critical to improve the communication of genetic risk within families. This will require a systematic approach that accounts for the nature of family relationships and sociocultural beliefs. This paper proposes the application of the Family Systems Illness Model, used in the setting of cancer care, to the evolving field of genomics.