Open AccessCanadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families
Author(s) -
Fernandez Conrad V.,
O'Rourke P. Pearl,
Beskow Laura M.
Publication year - 2015
Publication title -
the journal of law, medicine & ethics
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.515
H-Index - 57
eISSN - 1748-720X
pISSN - 1073-1105
DOI - 10.1111/jlme.12293
Subject(s) - research ethics , institutional review board , public relations , political science , engineering ethics , psychology , engineering , psychiatry
Genomic research may uncover results that have direct actionable benefit to the individual. An emerging debate is the degree to which researchers may have responsibility to offer results to the biological relatives of the research participant. In a companion study to one carried out in the United States, we describe the attitudes of Canadian Research Ethics Board (REB) chairs to this issue and their opinions as to the role of the REB in developing related policy.