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Public and dental professionals' use of social media to discuss amelogenesis imperfecta
Author(s) -
Henrick Victoria,
Marks Samantha,
Balmer Richard,
Barber Sophy
Publication year - 2022
Publication title -
international journal of paediatric dentistry
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 1.183
H-Index - 62
eISSN - 1365-263X
pISSN - 0960-7439
DOI - 10.1111/ipd.13015
Subject(s) - amelogenesis imperfecta , medicine , thematic analysis , social media , perspective (graphical) , qualitative research , dentistry , enamel paint , social science , artificial intelligence , sociology , political science , computer science , law
Abstract Background Amelogenesis imperfecta (AI) is an inherited disorder of enamel development that is challenging to treat and often associated with negative patient and parental outcomes. Social media provides a valuable perspective on patients' and dental professionals' experience of AI and dental care. Aim To explore how the public and dental professionals use social media to discuss AI. Design A cross‐sectional study involving a systemic search of eight social media platforms using the search term ‘amelogenesis imperfecta’. Relevant posts were selected using predefined eligibility criteria. Word content of eligible posts was qualitatively analysed using a thematic framework approach. Results A total of 555 posts were identified, of which 144 were eligible for analysis. For dental professionals, the posts included case reports and seeking and sharing of information. For the public, the posts were related to individuals' experience of AI, dental treatment and outcome of treatment. Conclusions Posts from individuals affected by AI suggest a need for better distribution of reliable information and greater support. Case reports indicate that dental professionals find it challenging to recognise AI and determine appropriate treatment options. Social media could potentially be used to inform and support people with AI and allow dental professionals to share information and learning with peers.