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Research agenda setting with children with juvenile idiopathic arthritis: Lessons learned
Author(s) -
Aussems Karijn,
Schoemaker Casper G.,
Verwoerd Anouk,
Ambrust Wineke,
Cowan Katherine,
Dedding Christine
Publication year - 2022
Publication title -
child: care, health and development
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.832
H-Index - 82
eISSN - 1365-2214
pISSN - 0305-1862
DOI - 10.1111/cch.12904
Subject(s) - alliance , prioritization , juvenile , focus group , medicine , qualitative research , psychology , arthritis , health care , work (physics) , medical education , political science , sociology , social science , management science , immunology , biology , anthropology , law , economics , genetics , mechanical engineering , engineering
Aim The aim of this qualitative study is to understand the research priorities of Dutch children with juvenile idiopathic arthritis (JIA) as well as researching how children can be involved. Background Several health research agendas have successfully been developed with adults but rarely with children. Children are still seldom recognized as possessing credible knowledge about their own body and life. This research project with focus group discussions and interviews with children with juvenile idiopathic arthritis (JIA) was an innovative addition to a nationwide prioritization of research questions of patients with JIA, their carers and health care professionals, based on the James Lind Alliance (JLA) methodology. Results Children with JIA appreciated being invited to give their opinion on JIA research prioritization as knowledgeable actors. They have clear views on what topics need most attention. They want more insight on how to medically and socially treat JIA so that they can better fulfil their aspirations at school, later in work and with their relationships. Conclusion We have identified the Top 5 research priorities for children with JIA. Most priorities are unique and differ from the priorities of the adolescents and young adults, parents and healthcare professionals in the main JLA priority setting exercise. Ultimately, two of the children's priorities were included in the final JLA Top 10.