Open AccessSupporting Research Sites in Resource-Limited Settings
Author(s) -
Christopher Whalen,
Deborah Donnell,
Michael Tartakovsky
Publication year - 2014
Publication title -
journal of acquired immune deficiency syndromes
Language(s) - Uncategorized
Resource type - Journals
SCImago Journal Rank - 2.162
H-Index - 157
eISSN - 1944-7884
pISSN - 1525-4135
DOI - 10.1097/qai.0000000000000039
Subject(s) - the internet , data science , electronic data capture , resource (disambiguation) , computer science , automatic identification and data capture , data collection , limited resources , business , knowledge management , world wide web , risk analysis (engineering) , computer network , statistics , mathematics , speech recognition
As information and communication technology infrastructure becomes more reliable, new methods of electronic data capture, data marts/data warehouses, and mobile computing provide platforms for rapid coordination of international research projects and multisite studies. However, despite the increasing availability of Internet connectivity and communication systems in remote regions of the world, there are still significant obstacles. Sites with poor infrastructure face serious challenges participating in modern clinical and basic research, particularly that relying on electronic data capture and Internet communication technologies. This report discusses our experiences in supporting research in resource-limited settings. We describe examples of the practical and ethical/regulatory challenges raised by the use of these newer technologies for data collection in multisite clinical studies.