The role of race and trust in tissue/blood donation for genetic research | Zendy

Jada BusseyJones | Zendy; Joanne M. Garrett | Zendy; Gail E. Henderson | Zendy; Mairead Moloney | Zendy; Connie Blumenthal | Zendy; Giselle CorbieSmith | Zendy

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The role of race and trust in tissue/blood donation for genetic research

Author(s) -

Jada BusseyJones,

Joanne M. Garrett,

Gail E. Henderson,

Mairead Moloney,

Connie Blumenthal,

Giselle CorbieSmith

Publication year - 2010

Publication title -

genetics in medicine

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 3.509

H-Index - 128

eISSN - 1530-0366

pISSN - 1098-3600

DOI - 10.1097/gim.0b013e3181cd6689

Subject(s) - donation , biobank , tissue donation , medicine , psychological intervention , trustworthiness , sample (material) , race (biology) , family medicine , biorepository , psychology , organ donation , social psychology , nursing , transplantation , bioinformatics , biology , chemistry , botany , chromatography , economics , economic growth

Public willingness to donate tissue samples is critical to genetic research. Prior work has linked minority status and mistrust with less willingness to provide specimens. Some have suggested recruitment of prior research participants to address these barriers. We present data from a genetic epidemiology study with a request for blood and/or saliva specimens to (1) measure willingness to donate tissue/blood samples, (2) identify demographic, trust, and other factors associated with willingness to donate samples, and (3) measure willingness to participate in future genetic research.

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