Communication regarding breathing support options for youth with Duchenne muscular dystrophy
Author(s) -
Eric Ferguson,
Marilyn Wright,
Teresa Carter,
Cindy Van Halderen,
Renata Vaughan,
Margaret Otter
Publication year - 2011
Publication title -
paediatrics and child health
Language(s) - English
Resource type - Journals
SCImago Journal Rank - 0.55
H-Index - 43
eISSN - 1918-1485
pISSN - 1205-7088
DOI - 10.1093/pch/16.7.395
Subject(s) - duchenne muscular dystrophy , medicine , timeline , modalities , neuromuscular disease , family medicine , physical therapy , disease , social science , archaeology , pathology , sociology , history
Ventilators for home use, manual and mechanically assisted coughing techniques, and the services of in-home respiratory therapists are options for youth with Duchenne muscular dystrophy (DMD). Evidence supports the use of these modalities, but there seems to be few youth who are receiving these therapies. Is there a knowledge transfer issue? Is there a lack of resources? What is the best way to discuss the issues? What do youth and parents want?
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