Health-Related Quality of Life in Pediatric Patients With Demyelinating Diseases: Relevance of Disability, Relapsing Presentation, and Fatigue | Zendy

Mariella M. Self | Zendy; Aaron D. Fobian | Zendy; Katherine Cutitta | Zendy; Arianne S. Wallace | Zendy; Timothy Lotze | Zendy

Open Access

Health-Related Quality of Life in Pediatric Patients With Demyelinating Diseases: Relevance of Disability, Relapsing Presentation, and Fatigue

Author(s) -

Mariella M. Self,

Aaron D. Fobian,

Katherine Cutitta,

Arianne S. Wallace,

Timothy Lotze

Publication year - 2017

Publication title -

journal of pediatric psychology

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 1.054

H-Index - 121

eISSN - 1465-735X

pISSN - 0146-8693

DOI - 10.1093/jpepsy/jsx093

Subject(s) - medicine , neuromyelitis optica , quality of life (healthcare) , multiple sclerosis , clinically isolated syndrome , physical therapy , disease , acute disseminated encephalomyelitis , pediatrics , demyelinating disease , psychiatry , nursing

Decreased health-related quality of life (HRQOL) in pediatric patients with multiple sclerosis is established, but little research has examined HRQOL in the broader pediatric demyelinating disease population, and predictors of reduced HRQOL are largely unexplored. We sought to (1) compare generic HRQOL and fatigue of pediatric patients with relapsing (i.e., multiple sclerosis and neuromyelitis optica) versus monophasic demyelinating diseases (i.e., acute disseminated encephalomyelitis, optic neuritis, transverse myelitis, clinically isolated syndrome) and (2) examine the extent to which disability, relapsing disease, and fatigue predict HRQOL.

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