From Genetics to Genomics: Ethics, Policy, and Parental Decision-making | Zendy

Benjamin S. Wilfond | Zendy; Lainie Friedman Ross | Zendy

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From Genetics to Genomics: Ethics, Policy, and Parental Decision-making

Author(s) -

Benjamin S. Wilfond,

Lainie Friedman Ross

Publication year - 2008

Publication title -

journal of pediatric psychology

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 1.054

H-Index - 121

eISSN - 1465-735X

pISSN - 0146-8693

DOI - 10.1093/jpepsy/jsn075

Subject(s) - genetic testing , psychosocial , genomics , psychology , genetic counseling , genetics , psychiatry , genome , biology , gene

Ethical evaluation of genetic testing in children is traditionally based on balancing clinical benefits and risks. However, this focus can be inconsistent with the general practice of respecting parental decision-making about their children's health care. We argue that respect for parental decision-making should play a larger role in shaping pediatric genetic testing practices, and play a similar role regarding decisions to use emerging genomic technologies.

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