Supporting Family Adaptation to Presymptomatic and "Untreatable" Conditions in an Era of Expanded Newborn Screening | Zendy

Donald B. Bailey | Zendy; F. Daniel Armstrong | Zendy; Alex R. Kemper | Zendy; Debra Skinner | Zendy; S. F. Warren | Zendy

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Supporting Family Adaptation to Presymptomatic and "Untreatable" Conditions in an Era of Expanded Newborn Screening

Author(s) -

Donald B. Bailey,

F. Daniel Armstrong,

Alex R. Kemper,

Debra Skinner,

S. F. Warren

Publication year - 2008

Publication title -

journal of pediatric psychology

Language(s) - English

Resource type - Journals

SCImago Journal Rank - 1.054

H-Index - 121

eISSN - 1465-735X

pISSN - 0146-8693

DOI - 10.1093/jpepsy/jsn032

Subject(s) - harm , newborn screening , psychosocial , adaptation (eye) , medicine , genetic testing , psychological intervention , intensive care medicine , psychology , psychiatry , pediatrics , social psychology , neuroscience

As technology advances, newborn screening will be possible for conditions not screened today. With an expansion of screening, strategies will be needed to support family adaptation to unexpected and possibly uncertain genetic information provided shortly after birth.

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