Implementation of a learning healthcare system for sickle cell disease | Zendy

R Eric Miller | Zendy; Erin Coyne | Zendy; Erin L. Crowgey | Zendy; Daniel Eckrich | Zendy; Jeffrey Myers | Zendy; Villanueva Raymond | Zendy; Jean Wadman | Zendy; Sidnie Jacobs-Allen | Zendy; Renee Gresh | Zendy; Samuel L. Volchenboum | Zendy; E. Anders Kolb | Zendy

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Implementation of a learning healthcare system for sickle cell disease

Author(s) -

R Eric Miller,

Erin Coyne,

Erin L. Crowgey,

Daniel Eckrich,

Jeffrey Myers,

Villanueva Raymond,

Jean Wadman,

Sidnie Jacobs-Allen,

Renee Gresh,

Samuel L. Volchenboum,

E. Anders Kolb

Publication year - 2020

Publication title -

jamia open

Language(s) - English

Resource type - Journals

ISSN - 2574-2531

DOI - 10.1093/jamiaopen/ooaa024

Subject(s) - health care , disease , healthcare system , computer science , medicine , political science , law

Using sickle cell disease (SCD) as a model, the objective of this study was to create a comprehensive learning healthcare system to support disease management and research. A multidisciplinary team developed a SCD clinical data dictionary to standardize bedside data entry and inform a scalable environment capable of converting complex electronic healthcare records (EHRs) into knowledge accessible in real time.

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